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Finding Consumers and Carers: Add New Entry Form

Add New Directory Entry

The Guide will be updated periodically. If you would like to be included in the Guide please fill in the details below. We will contact you to confirm the details of your entry prior to updating the database.

Organisational Details

Aims and Activities


Membership


Motivation of involvement in improving the safety and quality of health care


Level of Involvement

At what levels of the health system does your organisation/members prefer to be involved?

National

State

Local
 

Type of Involvement

The tables below identify ways in which consumers can participate in improving the safety and quality of health care. Please tick those ways that your organisation/members have been involved in health services.

Responding to/commenting on papers, facts sheets, web sites, education packs

Questionnaires and surveys

Representatives on boards

Membership of advisory/steering committees/reference groups

Focus groups

Individual and group interviews

Panels

Public meetings

Workshops/seminars/conferences

Training/education activities

Advocacy

Unknown
 

To be negotiated
 

Focus of Involvement

What has been the focus of these activities?

Evaluation

Feedback

Policy

Quality

Standards

Research

Ethics

Strategic Planning

Service Planning

Training
 

Education
 

Unknown
 

To be negotiated
 

Recruitment, selection, training, support & mentoring of members, consumers & carers

Assistance required for a consumer/member and carer to participate

What sort of support might your members need from a health service to participate?

Payment for time at meetings and preparation time

Reimbursement of costs (travel, childcare, carer/respite, attendant carer)

Carer/respite, childcare to be offered

Responsiveness to special requirements including dietary, transport

Orientation to organisation, health system, main issues, and mentoring by a staff member

Refreshment

Administrative support

Written material in easy English and supporting documentation supplied, if the document is lengthy an executive summary needs to be provided

Translation and interpretative support

Time for reading and/or to gain input from membership/board of management

Project responsiveness to individual needs of participant including, time during meetings to understand and to ask questions, acknowledgement of the ability of member and their disability, meetings held at a time convenient to use public transport

Staff, attendant carer or support person of family member to assist in travel to the project and or participation in the meeting

Hearing access (or hearing augmentation) for example an audio loop or note taker

Materials produced in a format which meets the requirements of the particular individual e.g. large print, audio, Braille, in an appropriate format for disk (word or plain text formats)

Meetings are held to time (often respite is booked for set times or people need to catch public transport)

Assistance with writing, and reading holding and turning pages

Payment for staff time in recruiting, selecting supporting and mentoring participants

Two consumers or carers rather than one to attend meetings